By Harry S. Margolis

A relatively new grassroots organization, Caring Across Generations, is working to change public policy to support people caring for people with disabilities of all ages. It is a coalition of over 200 other organizations. Its co-directors are Sarita Gupta, executive director of Jobs with Justice, and Ai-jen Poo, executive director of the National Domestic Workers Alliance and a MacArthur Award winner.

The organization's goal is "to bring our caregiving infrastructure into the 21st century, so everyone can age and care with dignity." It focuses its work in three areas: access to care, support for families and better care jobs. It argues without these changes we will not be able to meet the care needs of our aging population except through increased institutionalization.

By Harry S. Margolis

A new website offers information and resources for individuals and families facing end-of-life challenges. It is designed as both a destination itself with answers to questions about end-of-life topics and as a directory of services in the community. The website, www.endwithcare.org, grew out of the work of the Massachusetts Commission on End of Life Care and the Massachusetts Experts Panel on End of Life Care, which in 2014 came out with the report, Looking Forward: 2014 and Beyond. 

By Harry S. Margolis

In Mary Ellen Gioia v. Richard D. and Ann L. Ratner, the Essex County superior court in Massachusetts refuses to dismiss a lawsuit brought by a registered nurse who claims she was injured by a patient in her care. She brought the suit against the patient, Richard Ratner, and his wife and health care agent, Ann Ratner. Judge Diane M. Kottmyer rules that the suit against Mr. Ratner can move forward but dismisses the claim against his wife.

Along with the graying of America, our society is grappling with a dramatic surge of young adults impacted by autism and other intellectual or developmental disabilities who are aging out of school and into the vastly less supported real world. We need to think creatively about how to provide alternative housing options for them.

By Harry S. Margolis

We were very sorry to learn last week that Helen Kass, the first director of Creative Alliance at Sherrill House in Jamaica Plain, has passed away at age 82 from leukemia and cancer. Most geriatric care managers are individual practitioners. This was especially true in the early days of the profession. So, it was a unique enterprise when Sherrill House, a non-profit nursing home based in Jamaica Plain, introduced its own care management service with Ms. Kass in the lead.

By Harry S. Margolis

In a recent article in The Atlantic, Liz O'Donnell, a Boston writer and family caregiver, describes the dilemma faced by many American women who, already stretched thin by working, caring for children, and doing more than their share of chores at home, then become the primary care providers and managers for their parents.

By Karen B. Mariscal

On Sunday, December 6, the New York Times Magazine published a heartbreaking article, here, about Frank Stack of Elmhurst, Illinois, the father of two severely disabled adult children, and the husband of a dying wife. Over Labor Day weekend in 2014, Frank shot all three in the head and then killed himself.  It is clear from everyone who knew him that Frank thought he was acting out of love.  His children had very low intelligence and needed constant care, and he was getting to the point where he could no longer look after them.  Frank was 82 and had a bad back.  He had spent 50 years caring for his disabled children.  Although they recently had been living in group homes, Frank remained very much involved.